Participant Information

Study Title: A survey of people's beliefs about persistent musculoskeletal pain

Chief Investigator: Prof Denis Martin

Researchers: Nick Livadas, Prof Cormac Ryan, Gail Sowden

Hello, my name is Nick Livadas and I am a Senior Lecturer in the School of Health and Life Sciences, Teesside University. I am undertaking a research project and I would like to invite you to take part. Before you decide if you want to, please read the following information and discuss it with others if you wish. Please contact me if you have any questions – Nick Livadas, 01642 384902, n.livadas@tees.ac.uk

What is the purpose of the study?

This survey will seek the beliefs of the adult population in the United Kingdom in relation to persistent musculoskeletal pain. Persistent pain is also known as chronic or long term pain and lasts for 3 months or more. Musculoskeletal pain is typically related to pain experienced from the muscles, joints, spine, bones and/or nerves. The results of the survey will be shared with a  public health campaign called Flippin Pain. The current beliefs of the population may be useful to the Flippin Pain campaign team in designing effective public messaging.

Why am I being invited to take part?

You have been invited because you are 16+ years of age and live in the United Kingdom. Unfortunately, you can't take part if you do not live in United Kingdom and are not 16 years of age or older.

Do I have to take part?

No, taking part is entirely voluntary. 

What would I be asked to do if I chose to take part?

The following survey will first ask some general questions about yourself such as your age range, gender and any history of persistent pain. You will then be asked 16 questions relating to your beliefs about persistent pain. Each pain belief question will have 6 possible answers and you will be prompted to click on the statement you believe to be true. This survey should take between 5-10 minutes to complete. 

What are the possible disadvantages, or risks, of taking part?

There are no foreseeable risks to you taking part in this research. 

What are the possible benefits to taking part?

There will be no direct benefits for you. However, your responses may help the research team in developing a persistent pain public health campaign.

What would happen to the information collected about me?

The answers you provide, along with those provided by the other participants in the research, will be stored indefinitely on a computer at Teesside University that can only be accessed using a password. This is in keeping with good scientific practice to allow us to let other scientists see what we have done if they wish. If, as we intend, the study is published in a scientific journal, the data may be made publicly available (for example, as a supplement to the journal article, or stored online). A summary of the results will also be shared with Healthwatch who may wish to share the results with regional healthcare providers.  We are not collecting any personal data that would allow you to be identified. 

Our handling of your data is consistent with the statement below.

Personal data including special category data obtained for the purposes of this research project is processed lawfully in the necessary performance of scientific or historical research or for statistical purposes carried out in the public interest. Processing of personal data including special category data is proportionate to the aims pursued, respects the essence of data protection and provides suitable and specific measures to safeguard the rights and interests of the data subject in full compliance with the General Data Protection Regulation and the Data Protection Act 2018.

What would happen if I started, but, changed my mind?

If you decide that you do not want to complete the survey whilst part way through you may close your browser and your responses will not be included. If however you compete the survey and click submit the research team will then be unable to remove your responses as the data will be anonymised. Please note that if you fill in and return the survey that will mean that you have given your Informed Consent to take part in this study.

What happens if there are any problems?

If you are unhappy, or there is a problem, please talk to me. If you remain unhappy, or there is an issue which you do not wish to talk to me about please contact: Dr Darren Flynn, Chair of Health and Life Sciences, Research Ethics Subcommittee. Tel no: 01642 34 2749 Email: D.Flynn@tees.ac.uk. Dr Flynn, knows about, but is not involved in, this research:

Who has approved this study?

This study has been approved by the School of Health and Life Sciences, Research Ethics Subcommittee.